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April 1, 2009 - Sam is scheduled to have his feeding tube removed after seven months. NO JOKE!

It's interesting how this event is almost more of a celabratory event for us than the news about the results of the PET/CT scan. You may wonder how that could be, but when we stopped to analyze our feelings about our joint reaction to the results - we had more of a "Whew!" reaction than "Woo-hoo!".

I tried to explain this to a friend this way... it's like we've been being chased by a monster and we are running for our lives and we manage to barely escape... but we suspect the monster could return and try to scare the crap out of us again. It's kind of like that.. Whew!

For the past week, Sam has been logging his calories trying to consume 2300 calories/day so that he can maintain his weight.... without using the feeding tube... and he has been able to do that. Honestly, it's not been as easy as you might think in that he has trouble swallowing most solid/dry foods. (All the women out there like me who can look at food and gain weight - don't feel his pain, I know - poor boy.) But, he is really hot to get this tube out... especially since the test shows Sam to be in remission.

For the first time in a long time, there is an opportunity to do "normal things" again. I'll tell you about that in another post.....

Wednesday will be a page turner day! We can hardly wait.

Thanks for being our prayer support.