Sam got a call from Dr. Celin late this evening regarding the PET/CT scan... he said that there was no evidence of cancer. We are rejoicing and thank God that he has shown mercy to us in this situation!
There really aren't words to express how grateful we are for the prayers of family and friends and for the love that has been expressed to us. Thank you all for all the cards you have sent over the past two years... yes, that's right, it's been two years since Sam was diagnosed! We have been given the gift of realizing how precious life is!
All the best,
Maddy and Sam
Tuesday, July 20, 2010
Sunday, July 18, 2010
Waiting for Test Results Can Be......
Hi All - Sam had a PET/CT Scan on July 15th and we are awaiting the results. We don't expect to hear any news until at least a week after the test. The funny thing is that waiting for the test results this time is nothing like waiting for the first few test results.
It's not because we take it for granted that the tests will be negative for disease, it's just that we have learned not to live for test results. Going through a cancer treatment program and realizing that your life is not your own gives you a different perspective on life and death. We are much more appreciative of the life we have and recognize that God is in control and we don't have to sweat the small stuff.
We are blessed to recently have become grandparents and thought we'd share a photo of our new grandbaby, Sammy:
God has been so good to us! We are blessed beyond measure! We will post again when we know the results of the test... we are hopeful that we will have good news of no evidence of disease.
Maddy and Sam
It's not because we take it for granted that the tests will be negative for disease, it's just that we have learned not to live for test results. Going through a cancer treatment program and realizing that your life is not your own gives you a different perspective on life and death. We are much more appreciative of the life we have and recognize that God is in control and we don't have to sweat the small stuff.
We are blessed to recently have become grandparents and thought we'd share a photo of our new grandbaby, Sammy:
God has been so good to us! We are blessed beyond measure! We will post again when we know the results of the test... we are hopeful that we will have good news of no evidence of disease.
Maddy and Sam
Saturday, May 8, 2010
In case you were wondering...
Just a bit of an update of sorts...
Maddy has been preoccupied with a broken ankle since April 11th 2010. Don't ask unless you want the details... but, she's hoping to be back to normal, in another few weeks - oh wait... what is normal? Don't ask.
Let's talk about SAM. Better yet, let's do a comparison photo shot. This first one is from November 8, 2008. Sam was still getting most of his nourishment from a feeding tube, but in this picture he was eating cream of wheat (I think). He wasn't sure he would ever be able to swallow anything solid at that point.
Fast forward to April 11 2010 - Happiness is Pizza!
This was a real milestone for Sam. Being able to eat pizza again after thinking at one point that he would never be able to eat it again. Of course he still has to drink mass quantities of liquid to push the food down his throat, but that is a small price to pay for pizza - or any solid food.
He as been back to the ENT once since our last post and has another appointment in June. We are keeping our fingers crossed that he will be NED (no evidenc of disease). Better yet, we will be praying that God hears our prayer for that outcome. After all, He has brought us this far.
God Bless you, too.
Looking foward to summer!
Maddy and Sam
Maddy has been preoccupied with a broken ankle since April 11th 2010. Don't ask unless you want the details... but, she's hoping to be back to normal, in another few weeks - oh wait... what is normal? Don't ask.
Let's talk about SAM. Better yet, let's do a comparison photo shot. This first one is from November 8, 2008. Sam was still getting most of his nourishment from a feeding tube, but in this picture he was eating cream of wheat (I think). He wasn't sure he would ever be able to swallow anything solid at that point.
Fast forward to April 11 2010 - Happiness is Pizza!
This was a real milestone for Sam. Being able to eat pizza again after thinking at one point that he would never be able to eat it again. Of course he still has to drink mass quantities of liquid to push the food down his throat, but that is a small price to pay for pizza - or any solid food.
He as been back to the ENT once since our last post and has another appointment in June. We are keeping our fingers crossed that he will be NED (no evidenc of disease). Better yet, we will be praying that God hears our prayer for that outcome. After all, He has brought us this far.
God Bless you, too.
Looking foward to summer!
Maddy and Sam
Sunday, February 14, 2010
"Uncle!"
Saturday, February 6th, 2010 - The Big Dig
Like everyone else in the mid-Atlantic states, we are still digging out from the wallop we got from the fourth largest snow fall since they started keeping records. The snow was as deep as 3 feet in some areas where it drifted... officially the International Airport put the total at 21 inches. In the next photo, you can see it is up to their knees. It took a day and a half to dig out our driveway so our cars could make it to the private road. The plow service that clears our private roadway gave up on the task because of the volume of snow and finally on Sunday 2/7 some neighbors cleared the private roadway with their snow blowers.
We lost power from Friday night around 11:15 pm until about 4:30 am on Sunday morning. The temperature was around 20 degrees.... but we managed.
We feel blessed to have a warm home, food and many things that people long for in other parts of the world. All things considered,it could have been worse - just think Philadelphia and DC.
Sam's next doctor appointment is in a month. Nothing new to report along those lines. However, his back related pain levels are elevated from activity over the past week, so if you think of him, say a prayer that he will be able to recover and sleep well at night.
Wherever you are, may God be with you.
Wednesday, December 30, 2009
A Christmas Surprise
As some of you know, our son Max, his wife Leslie and her mother Jo, came to visit for the Christmas holiday... that was a gift in itself. They arrived on the 23rd after an 8 hour drive and amazingly Max and Leslie were able to keep a very big surprise to themselves - not even slipping and telling Jo.
The surprise - we are going to be Grandparents this summer!!!!!
After the initial jolt, I looked at Sam and smiled... somehow I knew it. A few months ago, Sam brought up the subject with Max and at that time he said they had nothing to announce. But, I became curious. Curious about his choice of words. And, the detective-mom in me began to chew on those words. A few weeks before the holiday, I told Sam that I thought we were going to get T-Shirts for Christmas that said, "I'm going to be a Grandparent" or something of that nature. He told me I was crazy. Well, he's kind of right... I am a little crazy... but, I'm also happy that I was right about my hunch!
In addition to this wonderful news, Sam had another visit with his E/N/T, Dr. Celin, who said that he doesn't see any evidence of disease. Also, Sam gained another pound from his last visit. With all the holiday goodies, I probably gained three since his last visit, but who's counting.
We are looking forward to the coming year and the promise of a new life. God is good, indeed!
We hope that your year will be full of blessed surprises.
Happy New Year,
Maddy and Sam
The surprise - we are going to be Grandparents this summer!!!!!
After the initial jolt, I looked at Sam and smiled... somehow I knew it. A few months ago, Sam brought up the subject with Max and at that time he said they had nothing to announce. But, I became curious. Curious about his choice of words. And, the detective-mom in me began to chew on those words. A few weeks before the holiday, I told Sam that I thought we were going to get T-Shirts for Christmas that said, "I'm going to be a Grandparent" or something of that nature. He told me I was crazy. Well, he's kind of right... I am a little crazy... but, I'm also happy that I was right about my hunch!
In addition to this wonderful news, Sam had another visit with his E/N/T, Dr. Celin, who said that he doesn't see any evidence of disease. Also, Sam gained another pound from his last visit. With all the holiday goodies, I probably gained three since his last visit, but who's counting.
We are looking forward to the coming year and the promise of a new life. God is good, indeed!
We hope that your year will be full of blessed surprises.
Happy New Year,
Maddy and Sam
Tuesday, December 1, 2009
Thankful Hearts
Hi Everyone - No new medical developments to report, but just wanted to touch base and say that we hope everyone had a peaceful Thanksgiving Holiday.
It's surreal to look back a year ago to see the difference in Sam's condition today compared to last year at this time. If you have time to go back and view the posts for November 23rd and November 17, 2008 - you will see the incredible progress Sam has made. It's funny how we so quickly forget past pain and suffering - but we suppose it's normal. But it is important to remember how things were, so that we can remain grateful for Sam's progress to this point.
It's ironic that Sam will sometimes gripe now that it takes so long to chew his food and that he has to drink a lot of liquid to help with swallowing. He is usually reminded (it won't be reported, by whom) of a time when he was dragging around a feeding tube for seven months which then helps to keep his current situation in perspective.
We are so looking forward to the Christmas holiday when our home will be filled with the hustle bustle of the season; family guests staying with us for the holidays; memories of Christmas past and hope for Christmas future. We will feast on favorite foods and Sam will do his best to try everything on the table.
A few weeks ago as we were reading from "Streams in the Desert", and were moved by a poetic verse included in that day's devotion.
If all my days were sunny could I say "In His fair land He wipes all tears away"?
If I were never weary could I keep this blessed truth, "He gives His loved ones sleep"?
If no grave were mine, I might come to deem the life eternal but a baseless dream. My winter, and my tears, and weariness, even my grave, may be his way to bless.
I call them ills, yet that can surely be nothing but love that shows my Lord to me.
From our own recent experience we could add to this a verse that says: "If we were never hungry, thirsty, or unable to swallow, could we really appreciate the bounty that has been provided for our enjoyment by our Creator"?
We thank you for your continued prayers for a total healing for Sam.
It's surreal to look back a year ago to see the difference in Sam's condition today compared to last year at this time. If you have time to go back and view the posts for November 23rd and November 17, 2008 - you will see the incredible progress Sam has made. It's funny how we so quickly forget past pain and suffering - but we suppose it's normal. But it is important to remember how things were, so that we can remain grateful for Sam's progress to this point.
It's ironic that Sam will sometimes gripe now that it takes so long to chew his food and that he has to drink a lot of liquid to help with swallowing. He is usually reminded (it won't be reported, by whom) of a time when he was dragging around a feeding tube for seven months which then helps to keep his current situation in perspective.
We are so looking forward to the Christmas holiday when our home will be filled with the hustle bustle of the season; family guests staying with us for the holidays; memories of Christmas past and hope for Christmas future. We will feast on favorite foods and Sam will do his best to try everything on the table.
A few weeks ago as we were reading from "Streams in the Desert", and were moved by a poetic verse included in that day's devotion.
If all my days were sunny could I say "In His fair land He wipes all tears away"?
If I were never weary could I keep this blessed truth, "He gives His loved ones sleep"?
If no grave were mine, I might come to deem the life eternal but a baseless dream. My winter, and my tears, and weariness, even my grave, may be his way to bless.
I call them ills, yet that can surely be nothing but love that shows my Lord to me.
From our own recent experience we could add to this a verse that says: "If we were never hungry, thirsty, or unable to swallow, could we really appreciate the bounty that has been provided for our enjoyment by our Creator"?
We thank you for your continued prayers for a total healing for Sam.
Tuesday, October 6, 2009
Test Results
Sam's PET/CT revealed No Evidence Of Disease!!!!
We thank God for this answer to prayer and want to express our appreciation to everyone who has prayed with us for this result. While we don't live for results, it is a comfort to hear those words.
This does not mean that our prayers stop. No, we will always have something to pray about - if not for Sam, then for others... there are always so many who need prayers.
The book of James, Chapter 5: 13-16 reads:
Is anyone among you in trouble? Let him say prayers. Is anyone glad? Let him make a song of praise. Is anyone among you ill? Let him send for the rulers of the church; and let them say prayers over him, putting oil on him in the name of the Lord. And by the prayer of faith the man who is ill will be made well, and he will be lifted up by the Lord, and for any sin which he has done he will have forgiveness. So then, make a statement of your sins to one another, and say prayers for one another so that you may be made well. The prayer of a good man is full of power in its working.
Remission from cancer is a huge comfort. If your heart is still moved to pray for Sam, here are his needs:
Love,
Sam and Maddy
We thank God for this answer to prayer and want to express our appreciation to everyone who has prayed with us for this result. While we don't live for results, it is a comfort to hear those words.
This does not mean that our prayers stop. No, we will always have something to pray about - if not for Sam, then for others... there are always so many who need prayers.
The book of James, Chapter 5: 13-16 reads:
Is anyone among you in trouble? Let him say prayers. Is anyone glad? Let him make a song of praise. Is anyone among you ill? Let him send for the rulers of the church; and let them say prayers over him, putting oil on him in the name of the Lord. And by the prayer of faith the man who is ill will be made well, and he will be lifted up by the Lord, and for any sin which he has done he will have forgiveness. So then, make a statement of your sins to one another, and say prayers for one another so that you may be made well. The prayer of a good man is full of power in its working.
Remission from cancer is a huge comfort. If your heart is still moved to pray for Sam, here are his needs:
- That Sam's ability to swallow will improve and that his saliva glands will be restored and produce more saliva. (He must consume a lot of liquid (about 40 ounces per meal) to aid his swallowing and makes it challenging to acquire the calories he needs to keep his weight up.) He would love to be able to eat pizza or a hoagie - just once.
- His old back injury causes chronic leg and foot pain prevents him from getting the restful sleep that is so important in the healing process.
Love,
Sam and Maddy
Monday, October 5, 2009
Still Waiting
Sam called his E/N/T on Friday and learned that they had not yet received the results of Sam's most recent PET/CT Scan 9/21/09 ... two weeks ago (10 working days) and that his doctor is on vacation until Tuesday or Wednesday so it will be a few more days until we know if Sam is still cancer free.
It seems like it's harder to be patient for results the closer it gets to knowing. Most of the time we just don't think about it, but fear and doubt do creep in and try to disrupt the peace; but we have learned from experience that the best thing to do is focus on the now and let the rest up to God.
In the meantime, we covet your prayers for peace and strength.
Carpe Diem!
It seems like it's harder to be patient for results the closer it gets to knowing. Most of the time we just don't think about it, but fear and doubt do creep in and try to disrupt the peace; but we have learned from experience that the best thing to do is focus on the now and let the rest up to God.
In the meantime, we covet your prayers for peace and strength.
Carpe Diem!
Sunday, September 20, 2009
Homage to Paul and Margery Zeller
PawPaw Festival, September 19-20, 2009 in Albany, Ohio
Summer's last hurrah? Nope... just two wild and crazy guys named Sam and Maddy.
It all started several months ago when Maddy came across an article in an Ohio Magazine regarding the upcoming 11th annual PawPaw Festival... a what festival? Never heard of a pawpaw? Neither had she so, ever the detective, the curiosity got the best of her.
The pawpaw is the fruit of a tree that is native to the Ohio area and it is tropical tasting and somewhat perishable, so it doesn't usually make it to market. But a festival? We had to go. So, go we did.
It's not the prettiest fruit - or tree, but it tastes pretty good - sort of a creamy texture with the flavor a cross between a banana and a mango. The outer green skin is not eaten and the inside pulp is a buttery color. They even make beer out of it: Maddy's not a beer drinker, but she had to taste it.
Yep, it tastes like beer.
Not being a beer drinker... it wasn't the highlight of the day for her, but at least she can say she tried it. Sam only had a sip since he's not supposed to have any alcohol because it is too drying for his mouth now that the radiologist destroyed all his salivary glands - he wasn't impressed either. At least he doesn't have to feel bad about missing out on less-than-delicious tasting pawpaw beer ;)
The festival was held at Lake Snowden, a beautiful recreation and education park owned and operated by Hocking College. It offers camping, fishing, picnic and swimming, boating, equine camp and trails. Now, in case you are wondering, we did none of the aforementioned activities, but it was a beautiful day and we enjoyed the scenery. Here's a link if you want to learn more: http://www.lakesnowden.com/camping
We stayed in Athens, Ohio which is most famous for Ohio University. It's a quaint college town with a sort of a 60's flair... lots of laid back 20-30 somethings.
You might be wondering about the title of the post "Homage to Paul and Margery Zeller". Well, they are sort of an inspiration to us. Paul and Margery have been "Living their Dream" self-described "baby boomers privileged to enjoy our dream of early retirement while traveling full-time in our RV." Check out their fantastic blog: http://here4now.typepad.com/here4now/
Cancer and I'm sure other life-threatening illnesses or situations transforms you. It makes you think of life from a new perspective. Some of it really sucks, but what we have now is a greater joy of living. All the same life problems and pains are still there, but the heart is strengthened and there is a new found pleasure in the mundane.
Tomorrow morning, September 21st, Sam will have a PET/CT Scan - it's been a year now since his treatments were completed. We are praying for a clean scan. It will be a while before we get the results... so stay tuned.
Other Things to Pray About: G-20 protesters (that they will not be violent) and for the safety of the men and women who protect and defend our city and country.
God Bless.
P.S. Just in case you decide to check-out the PawPaw Festival next year, here's a link to get you started: http://www.ohiopawpawfest.com/
Summer's last hurrah? Nope... just two wild and crazy guys named Sam and Maddy.
It all started several months ago when Maddy came across an article in an Ohio Magazine regarding the upcoming 11th annual PawPaw Festival... a what festival? Never heard of a pawpaw? Neither had she so, ever the detective, the curiosity got the best of her.
The pawpaw is the fruit of a tree that is native to the Ohio area and it is tropical tasting and somewhat perishable, so it doesn't usually make it to market. But a festival? We had to go. So, go we did.
It's not the prettiest fruit - or tree, but it tastes pretty good - sort of a creamy texture with the flavor a cross between a banana and a mango. The outer green skin is not eaten and the inside pulp is a buttery color. They even make beer out of it: Maddy's not a beer drinker, but she had to taste it.
Yep, it tastes like beer.
Not being a beer drinker... it wasn't the highlight of the day for her, but at least she can say she tried it. Sam only had a sip since he's not supposed to have any alcohol because it is too drying for his mouth now that the radiologist destroyed all his salivary glands - he wasn't impressed either. At least he doesn't have to feel bad about missing out on less-than-delicious tasting pawpaw beer ;)
The festival was held at Lake Snowden, a beautiful recreation and education park owned and operated by Hocking College. It offers camping, fishing, picnic and swimming, boating, equine camp and trails. Now, in case you are wondering, we did none of the aforementioned activities, but it was a beautiful day and we enjoyed the scenery. Here's a link if you want to learn more: http://www.lakesnowden.com/camping
We stayed in Athens, Ohio which is most famous for Ohio University. It's a quaint college town with a sort of a 60's flair... lots of laid back 20-30 somethings.
You might be wondering about the title of the post "Homage to Paul and Margery Zeller". Well, they are sort of an inspiration to us. Paul and Margery have been "Living their Dream" self-described "baby boomers privileged to enjoy our dream of early retirement while traveling full-time in our RV." Check out their fantastic blog: http://here4now.typepad.com/here4now/
Cancer and I'm sure other life-threatening illnesses or situations transforms you. It makes you think of life from a new perspective. Some of it really sucks, but what we have now is a greater joy of living. All the same life problems and pains are still there, but the heart is strengthened and there is a new found pleasure in the mundane.
Tomorrow morning, September 21st, Sam will have a PET/CT Scan - it's been a year now since his treatments were completed. We are praying for a clean scan. It will be a while before we get the results... so stay tuned.
Other Things to Pray About: G-20 protesters (that they will not be violent) and for the safety of the men and women who protect and defend our city and country.
God Bless.
P.S. Just in case you decide to check-out the PawPaw Festival next year, here's a link to get you started: http://www.ohiopawpawfest.com/
Friday, September 11, 2009
We Must Never Forget
What follows is the entry for September 11th from a devotional that Sam and I are reading entitled "Springs in the Valley". We started the new year reading another devotional by the same author, L.B. Cowman, entitled "Streams in the Desert" which we have benefited from greatly... today's entry is uncanny considering how we have come to regard the anniversary of that beautiful morning marred by madmen.
The amazing thing about this entry is that it was published in 1939.
================================================
I do not fight with merely human weapons. No, the weapons with which I war are not weapons of mere flesh and blood, but, in the strength of the Lord, they are mighty enough to raze all strongholds of our foes. I can batter down bulwarks of human reason; I can scale every crag-fortress that towers up bidding defiance to the true knowledge of God. I can make each rebel purpose my prisoner of war and bow it into submission to Messiah. (2Cor. 10:4-5 Way's trans.)
He said not,
"Thou shalt not be
Tempested;
Thou shalt not be
Travailed;
Thou shalt not be
Afflicted";
But he said,
"Thou shalt not be
Overcome!"
attributed to: Julian of Norwick, a.d. 1373
We are not here to be overcome, but we are to rise unvanquished after every knockout blow, and laugh the laugh of faith - not fear.
Tempested on the sea of life;
Travailed sore, amid earth's strife;
Afflicted often, and sore dismayed;
Look up, faint heart, be not afraid,
Thou salt not be overcome!
God's ways are far beyond our ken;
His thoughts are not the thoughts of men;
And He knoweth what is best for you.
Hope on, my friend, He will bear you through,
Thou shalt not be overcome!
Though "The reason why" we cannot see,
Our Father knows - 'tis enough that we
But trust His love, when our eyes are dim.
Look up! Hold fast! though the fight is grim,
We shall not be overcome!
written by: Mary E. Thompson
====================================================
================================================
I do not fight with merely human weapons. No, the weapons with which I war are not weapons of mere flesh and blood, but, in the strength of the Lord, they are mighty enough to raze all strongholds of our foes. I can batter down bulwarks of human reason; I can scale every crag-fortress that towers up bidding defiance to the true knowledge of God. I can make each rebel purpose my prisoner of war and bow it into submission to Messiah. (2Cor. 10:4-5 Way's trans.)
He said not,
"Thou shalt not be
Tempested;
Thou shalt not be
Travailed;
Thou shalt not be
Afflicted";
But he said,
"Thou shalt not be
Overcome!"
attributed to: Julian of Norwick, a.d. 1373
We are not here to be overcome, but we are to rise unvanquished after every knockout blow, and laugh the laugh of faith - not fear.
Tempested on the sea of life;
Travailed sore, amid earth's strife;
Afflicted often, and sore dismayed;
Look up, faint heart, be not afraid,
Thou salt not be overcome!
God's ways are far beyond our ken;
His thoughts are not the thoughts of men;
And He knoweth what is best for you.
Hope on, my friend, He will bear you through,
Thou shalt not be overcome!
Though "The reason why" we cannot see,
Our Father knows - 'tis enough that we
But trust His love, when our eyes are dim.
Look up! Hold fast! though the fight is grim,
We shall not be overcome!
written by: Mary E. Thompson
====================================================
Did you know that in 1939:
Germany and the Soviet Union attacked Poland and Britain, France, India, Australia and new Zealand declared war on Germany on September 3rd , the United States decided to remain neutral but did begin rearming for war , which helped end the great depression. The United States also hosted the Worlds Fair in New York early in the year. Also after speaking to the physicist Albert Einstein president Roosevelt initiated the Americas A-Bomb programme. Continuing drought conditions in the North Eastern US causing mass crop failure and hardship.
How Much things cost in 1939
Average Cost of new house $3,800.00
Average wages per year $1,730.00
Cost of a gallon of Gas 10 cents
Average Cost for house rent $28.00 per month
A loaf of Bread 8 cents
A LB of Hamburger Meat 14 cents
Average Price for new car $700.00
Toaster $16.00
Germany and the Soviet Union attacked Poland and Britain, France, India, Australia and new Zealand declared war on Germany on September 3rd , the United States decided to remain neutral but did begin rearming for war , which helped end the great depression. The United States also hosted the Worlds Fair in New York early in the year. Also after speaking to the physicist Albert Einstein president Roosevelt initiated the Americas A-Bomb programme. Continuing drought conditions in the North Eastern US causing mass crop failure and hardship.
How Much things cost in 1939
Average Cost of new house $3,800.00
Average wages per year $1,730.00
Cost of a gallon of Gas 10 cents
Average Cost for house rent $28.00 per month
A loaf of Bread 8 cents
A LB of Hamburger Meat 14 cents
Average Price for new car $700.00
Toaster $16.00
Some things do change, but the potential for evil will always be with us.
Hug a loved one and tell them you love them.
Wednesday, September 2, 2009
A Conversation on the Street
I ran out at lunchtime to grab a bite to eat (with a detour to Macy’s, of course) and on the way back to work, I saw an act of kindness that made me feel good about Pittsburghers. There was a woman in front of me at a crosswalk who was slight of build, using a cane like the type people who are sight-challenged would use.
Standing next to her was a young male in this late twenties/early thirties who asked her if she needed help and she said, “No, I think I’m alright. If I need to, I’ll grab your arm. I can see somewhat but am not steady on my feet.” We all moved with the light change and as he turned to walk in a different direction I was then next to her. I remarked to her, “Pittsburghers are nice, huh?”
She said, “Pittsburgh’s my home-town and I love it. I was living elsewhere and had to move back here 22 years ago after I was in a hit and run accident, but I have been so blessed by God, especially by people here.” I said, “I know recovering from a physical trial can be challenging but there are so many blessing that come with that experience.”
“God is so good,” she said. “I agree, in good times and bad,” I replied. “That’s so true. God bless you,” she said as we parted ways. “God bless you as well,” I replied.
The genuineness was in her eyes. You could see through to her soul. She had the peace that passes all understanding. It was a beautiful reminder of the lesson we learned through Sam’s cancer experience – abundant and lasting peace comes when you trust God for everything.
I think we all resist painful experiences because we like comfort. But, oh the blessings you can receive when your world is shaken by trials if you only will trust and wait.
Standing next to her was a young male in this late twenties/early thirties who asked her if she needed help and she said, “No, I think I’m alright. If I need to, I’ll grab your arm. I can see somewhat but am not steady on my feet.” We all moved with the light change and as he turned to walk in a different direction I was then next to her. I remarked to her, “Pittsburghers are nice, huh?”
She said, “Pittsburgh’s my home-town and I love it. I was living elsewhere and had to move back here 22 years ago after I was in a hit and run accident, but I have been so blessed by God, especially by people here.” I said, “I know recovering from a physical trial can be challenging but there are so many blessing that come with that experience.”
“God is so good,” she said. “I agree, in good times and bad,” I replied. “That’s so true. God bless you,” she said as we parted ways. “God bless you as well,” I replied.
The genuineness was in her eyes. You could see through to her soul. She had the peace that passes all understanding. It was a beautiful reminder of the lesson we learned through Sam’s cancer experience – abundant and lasting peace comes when you trust God for everything.
I think we all resist painful experiences because we like comfort. But, oh the blessings you can receive when your world is shaken by trials if you only will trust and wait.
Wednesday, August 12, 2009
Follow-up Dr. Visit 8/12/09
Hi All: Just a quick post regarding Sam's visit today with Dr. Celin. I'm happy to report that the good doctor feels that Sam looks well and the physical exam did not reveal any issues.
We are coming up to a year since the treatments ended and that prompted the decision to schedule another PET/CT Scan for sometime in September. Dr. Celin said that the likelihood of these cancers returning are greatest in the first two years with the majority occurring in the first year, so getting a clean PET/CT will make us all feel better.
Sam did gain a few pounds and according to their scale his weight is now 155 pounds. And, considering his challenges with certain foods, that's a positive sign.
If you are praying for us, we would ask that you continue to pray that Sam would remain in remission.
God Bless.
Maddy
We are coming up to a year since the treatments ended and that prompted the decision to schedule another PET/CT Scan for sometime in September. Dr. Celin said that the likelihood of these cancers returning are greatest in the first two years with the majority occurring in the first year, so getting a clean PET/CT will make us all feel better.
Sam did gain a few pounds and according to their scale his weight is now 155 pounds. And, considering his challenges with certain foods, that's a positive sign.
If you are praying for us, we would ask that you continue to pray that Sam would remain in remission.
God Bless.
Maddy
Friday, August 7, 2009
Blog Boycott
What, no post since June 13th? Have we boycotted our own blog? No, just gathering thoughts and trying to resume a more normal lifestyle.
We have been reflecting on the past year and have some thoughts to share with you on the past year’s experiences.
Reflections of – the way life used to be.
In my very first post on August 5, 2008 entitled: Why Blog, I wrote:
“It is our hope that this blog will allow us to share information and our prayer needs regarding Sam's cancer battle with all who share this journey with us. It is my hope that I will be able to communicate Sam’s progress, what God is doing in our lives and how we see Him work all of this out for our good.
My inspiration for the title of our blog comes from a message I heard at our church, North Park Church, on July 13th by Pastor Bill Meyer, entitled Kingdom Power is Mysterious and Awesome Mark 4:26-34 (http://www.northparkepc.org/).
In that message Pastor Meyer references the Apostle Paul's letter to the Romans chapter 5: 1-5....(Therefore, having been justified by faith, we have peace with God through our Lord Jesus Christ, through whom also we have obtained our introduction by faith into this grace in which we stand; and we exult in hope of the glory of God. And not only this, but we also exult in our tribulations, knowing that tribulation brings about perseverance; and perseverance, proven character; and proven character, hope; and hope does not disappoint, because the love of God has been poured out within our hearts through the Holy Spirit who was given to us.)
Sam and I are standing because of God's grace and mercy.”
Question - Have the "tribulations" we experienced over the last year caused us to persevere, build character, and give us hope that does not disappoint? Absolutely! And, there is no question that we have felt the love of God in our hearts.
After the shock of learning that Sam had cancer and coping with the concept that this has actually happened in our lives – there’s the 35 radiation treatments and 3 rounds of chemo; a feeding tube for 7 months; one hospital stay and several trips to the E.R.; drugs so powerful they made Sam talk incoherently in his sleep not to mention constant nausea and a 41 pound weight drop, managing taking multiple medications several times a day through a feeding tube because he couldn’t swallow; radiation burns and other various doctor tortures, we feel blessed that Sam is in remission and able to have some semblance of a “normal” life. Just getting through the past year alive is a victory.
We do believe that God has worked many things together for our good and we can attest that:
•We are definitely grateful that Sam is alive and in remission.
•We have grown closer as a couple and in our relationship with God.
•We have a new appreciation for living life daily to the fullest.
•We have learned to cast all our cares on God and not worry so much about the small stuff.
•We understand more fully that life is fragile and can be taken from us at any moment.
•We felt the love of our children and our family through their care and concern for us.
•Our prayer life and understanding the benefits of prayer have grown by leaps and bounds.
•We have felt the love of others through all the get-well wishes and prayers offered on our behalf and are grateful for a special “NPC youth leader” and a wonderful neighbor who put legs to their lips by volunteering to help Maddy with some yard tasks that were bigger than she could handle.
•We saw God’s provision financially and were emotionally sustained by His grace through uncertain times.
•We developed relationships and can empathize with others who are ill and for their loved ones who are struggling with all the things that come with illness and loss.
The list could go on and on, so if you are interested in our perspective of thriving in uncertain times, check back as I hope to share more in the upcoming weeks.
Thanks for caring. We couldn't have made it this far without all of your love and prayers.
Maddy and Sam
We have been reflecting on the past year and have some thoughts to share with you on the past year’s experiences.
Reflections of – the way life used to be.
In my very first post on August 5, 2008 entitled: Why Blog, I wrote:
“It is our hope that this blog will allow us to share information and our prayer needs regarding Sam's cancer battle with all who share this journey with us. It is my hope that I will be able to communicate Sam’s progress, what God is doing in our lives and how we see Him work all of this out for our good.
My inspiration for the title of our blog comes from a message I heard at our church, North Park Church, on July 13th by Pastor Bill Meyer, entitled Kingdom Power is Mysterious and Awesome Mark 4:26-34 (http://www.northparkepc.org/).
In that message Pastor Meyer references the Apostle Paul's letter to the Romans chapter 5: 1-5....(Therefore, having been justified by faith, we have peace with God through our Lord Jesus Christ, through whom also we have obtained our introduction by faith into this grace in which we stand; and we exult in hope of the glory of God. And not only this, but we also exult in our tribulations, knowing that tribulation brings about perseverance; and perseverance, proven character; and proven character, hope; and hope does not disappoint, because the love of God has been poured out within our hearts through the Holy Spirit who was given to us.)
Sam and I are standing because of God's grace and mercy.”
Question - Have the "tribulations" we experienced over the last year caused us to persevere, build character, and give us hope that does not disappoint? Absolutely! And, there is no question that we have felt the love of God in our hearts.
After the shock of learning that Sam had cancer and coping with the concept that this has actually happened in our lives – there’s the 35 radiation treatments and 3 rounds of chemo; a feeding tube for 7 months; one hospital stay and several trips to the E.R.; drugs so powerful they made Sam talk incoherently in his sleep not to mention constant nausea and a 41 pound weight drop, managing taking multiple medications several times a day through a feeding tube because he couldn’t swallow; radiation burns and other various doctor tortures, we feel blessed that Sam is in remission and able to have some semblance of a “normal” life. Just getting through the past year alive is a victory.
We do believe that God has worked many things together for our good and we can attest that:
•We are definitely grateful that Sam is alive and in remission.
•We have grown closer as a couple and in our relationship with God.
•We have a new appreciation for living life daily to the fullest.
•We have learned to cast all our cares on God and not worry so much about the small stuff.
•We understand more fully that life is fragile and can be taken from us at any moment.
•We felt the love of our children and our family through their care and concern for us.
•Our prayer life and understanding the benefits of prayer have grown by leaps and bounds.
•We have felt the love of others through all the get-well wishes and prayers offered on our behalf and are grateful for a special “NPC youth leader” and a wonderful neighbor who put legs to their lips by volunteering to help Maddy with some yard tasks that were bigger than she could handle.
•We saw God’s provision financially and were emotionally sustained by His grace through uncertain times.
•We developed relationships and can empathize with others who are ill and for their loved ones who are struggling with all the things that come with illness and loss.
The list could go on and on, so if you are interested in our perspective of thriving in uncertain times, check back as I hope to share more in the upcoming weeks.
Thanks for caring. We couldn't have made it this far without all of your love and prayers.
Maddy and Sam
Saturday, June 13, 2009
Post #93 - In case you were wondering
A friend said today that I haven't posted for a while and I guess that is a good indication of how things are going. Not a lot has changed since post #92 on May 17th, Sam's birthday, and that's a good thing. I'm happy not to have anything dramatic/traumatic to share.... and the everyday mundane things that everyone experience don't make for good blogging.
So, for the update - On Wednesday, June 10th, Sam had a follow up visit with the E/N/T, Dr. Celin and after examining his throat and lymph nodes, etc. he said, "Sam, you look perfect."
I think perfect may be an overstatement, but all things considered Sam looks great.
Since his last visit with Dr. Celin 8 weeks ago he has gained about 2 pounds (he's up to 150 1/2), which is good when you consider what he has to do to swallow food. Due to the fact that the mouth dryness has not improved, he must take small bites of food and masticate it well and then follow each bite with some fluid, unless he's eating soup. You can imagine how quickly you would feel full after consuming so much liquid. And, in order to maintain his weight, he intentionally drinks juice, milk or chocolate milk, or other things that are calorie dense.
But, even with the challenges from his cancer treatments and leg pain Sam does look and feel good so, please don't feel sorry for Sam... he feels very blessed. We were talking about that very subject today; how that six months ago we could not have imagined going out for lunch or that things might ever be routine and mundane again. Someone once said, "The only way to know strong faith is to endure great trials." God's greatest gifts sometimes come through great pain. Has there ever been any great discovery benefiting humankind or anything of value - like our freedoms - that did not require sacrifice and suffering?
Someone named Madame Guyon wrote: "I implore you to not give in to despair. It is a dangerous temptation, because our Adversary has refined it to the point that it is quite subtle. Hopelessness constricts and withers the heart, rendering it unable to sense God's blessings and grace. It also causes you to exaggerate the adversities of life and makes your burdens seem too heavy for you to bear. Yet God's plans for you, and his ways of bringing about His plans, are infinitely wise." (from Streams in the Desert)
In my next post - #94, I hope to have something fun and exciting to report. But I will settle for mundane as long as Sam is still in remission.
Blessing and peace,
Maddy
So, for the update - On Wednesday, June 10th, Sam had a follow up visit with the E/N/T, Dr. Celin and after examining his throat and lymph nodes, etc. he said, "Sam, you look perfect."
I think perfect may be an overstatement, but all things considered Sam looks great.
Since his last visit with Dr. Celin 8 weeks ago he has gained about 2 pounds (he's up to 150 1/2), which is good when you consider what he has to do to swallow food. Due to the fact that the mouth dryness has not improved, he must take small bites of food and masticate it well and then follow each bite with some fluid, unless he's eating soup. You can imagine how quickly you would feel full after consuming so much liquid. And, in order to maintain his weight, he intentionally drinks juice, milk or chocolate milk, or other things that are calorie dense.
But, even with the challenges from his cancer treatments and leg pain Sam does look and feel good so, please don't feel sorry for Sam... he feels very blessed. We were talking about that very subject today; how that six months ago we could not have imagined going out for lunch or that things might ever be routine and mundane again. Someone once said, "The only way to know strong faith is to endure great trials." God's greatest gifts sometimes come through great pain. Has there ever been any great discovery benefiting humankind or anything of value - like our freedoms - that did not require sacrifice and suffering?
Someone named Madame Guyon wrote: "I implore you to not give in to despair. It is a dangerous temptation, because our Adversary has refined it to the point that it is quite subtle. Hopelessness constricts and withers the heart, rendering it unable to sense God's blessings and grace. It also causes you to exaggerate the adversities of life and makes your burdens seem too heavy for you to bear. Yet God's plans for you, and his ways of bringing about His plans, are infinitely wise." (from Streams in the Desert)
In my next post - #94, I hope to have something fun and exciting to report. But I will settle for mundane as long as Sam is still in remission.
Blessing and peace,
Maddy
Sunday, May 17, 2009
Happy Birthday to Sam
Sam is 58 today. We are enthusiaticly celebrating this birthday because of all we have been through in the past year and are thankful that we can celebrate this birthday with his cancer in remission. It is awesome that he can celebrate this day free of a feeding tube and looking as though he had not been through a tremendous battle.
In other news:
In other news:
About a week ago, our daughter Deanna moved back to Pittsburgh and is living with us again – along with her cat “Rue”. It is wonderful that she is back in the area again and it has been interesting to watch the two cats “Rue and Nico” adjust to one another. They seem to be keeping their respectful distances and only occasionally challenge one another. More stories to come.
We are looking forward to summer and the thoughts of planting a garden again… this time we are hopeful that Sam will be able to enjoy the harvest – unlike last year. That’s a new goal for us.
Please keep us in your prayers and hopefully we will continue to receive encouraging reports from Sam’s physicians.
We are looking forward to summer and the thoughts of planting a garden again… this time we are hopeful that Sam will be able to enjoy the harvest – unlike last year. That’s a new goal for us.
Please keep us in your prayers and hopefully we will continue to receive encouraging reports from Sam’s physicians.
Saturday, May 2, 2009
Daily Life - A New Normal
Hi All – haven’t updated for a while – mostly because things are somewhat back to “normal”. Sam is adjusting to his new routines. Most changes focus around eating.
The main challenge for Sam is consuming enough daily calories to keep his weight up. He is holding around 150 pounds. His daily routine includes a high calorie shake using the formula that he was taking by tube, ice cream, a Reese’s PB cup and anything else that comes to mind. In general he is still having some difficulty getting certain foods down, but he is managing. He could stand to gain another ten pounds or so, but he isn’t really “skinny” any more – neither am I, but that’s another sad story… ha ha ha
Now that summer is around the corner, I have been trying to learn more about what precautions Sam will need to take regarding sun exposure. I think I read somewhere that people who have received radiation treatments should limit their sun exposure and always wear sun screen. That seems pretty reasonable… and something most of us should do anyway to avoid skin cancers.
One thing that Sam is experiencing now is more hip/leg/foot pain from his back injury and sciatic nerve damage. While he was under chemo/radiation treatments he spent the majority of his time reclined and therefore not as active. Now that he’s feeling better and being a little more active his pain levels have increased and are chronic. It’s just something he has had to learn to live with and most people wouldn’t recognize when his pain levels are elevated – he hides it pretty well.
The next doctor visit scheduled is not until the first week of June and it’s nice to have a break from doctor appointments and it’s another indication of a return to some normalcy.
Thanks for checking in on our blog and please don’t hesitate to leave a comment or a question. Just keep in mind that if you post anonymously I will not have a way to respond.
I’ll post again in a week or two unless there is something to report.
If you think of us please keep us in your prayers.
Blessings,
Maddy
The main challenge for Sam is consuming enough daily calories to keep his weight up. He is holding around 150 pounds. His daily routine includes a high calorie shake using the formula that he was taking by tube, ice cream, a Reese’s PB cup and anything else that comes to mind. In general he is still having some difficulty getting certain foods down, but he is managing. He could stand to gain another ten pounds or so, but he isn’t really “skinny” any more – neither am I, but that’s another sad story… ha ha ha
Now that summer is around the corner, I have been trying to learn more about what precautions Sam will need to take regarding sun exposure. I think I read somewhere that people who have received radiation treatments should limit their sun exposure and always wear sun screen. That seems pretty reasonable… and something most of us should do anyway to avoid skin cancers.
One thing that Sam is experiencing now is more hip/leg/foot pain from his back injury and sciatic nerve damage. While he was under chemo/radiation treatments he spent the majority of his time reclined and therefore not as active. Now that he’s feeling better and being a little more active his pain levels have increased and are chronic. It’s just something he has had to learn to live with and most people wouldn’t recognize when his pain levels are elevated – he hides it pretty well.
The next doctor visit scheduled is not until the first week of June and it’s nice to have a break from doctor appointments and it’s another indication of a return to some normalcy.
Thanks for checking in on our blog and please don’t hesitate to leave a comment or a question. Just keep in mind that if you post anonymously I will not have a way to respond.
I’ll post again in a week or two unless there is something to report.
If you think of us please keep us in your prayers.
Blessings,
Maddy
Wednesday, April 8, 2009
Reboot… life after a feeding tube
The smile on Sam’s face tells the story.
The feeding tube removal went smoothly and while there was some discomfort when Dr. Thomas pulled the tube out, there was relatively little pain afterward and even more amazingly, no restrictions on eating or drinking. I think we both thought Sam would spring a leak like a scene from a cartoon – but apparently the stomach heals over very quickly and there was no leakage.
However, the wound site looks like Sam was hit with an arrow and it will take a little longer to close up. It almost looks like he has two belly buttons. I told him he would be able to tell his grandchildren tall tales one day. Of course, we would have to have grandchildren for that to happen. No pressure, of course, on our children.
On Tuesday, April 7 th, Sam was examined by his E/N/T, Dr. Celin, who again said he saw no evidence of disease. This is a phrase we love hearing. We asked if Sam would continue to improve and his answer was non-committal. He said that most improvements occur in the first six months following treatment, but smaller changes could continue to occur up to 18 months after the cancer treatments end. It’s been almost 7 months since Sam’s final radiation and chemo treatments and he has recently noticed some increased ability to swallow larger quantities of food in one bite.
We continue to pray that his saliva production would increase because his limited saliva production is still hampering his eating/swallowing, but he is trying to adapt and I’m always impressed that doesn’t complain. Also, he now weighs 148 pounds – a 19 pound gain from his lowest weight in September 2008.
The best part of Sam’s feeding tube removal for me is that I can hug my honey again without having to worry about his tube being in the way or hurting him. It’s the little things that become precious.
I’ll close with a quote from Streams in the Desert by L.B. Cowman: “This is the blessed life – not anxious to see far down the road nor overly concerned about the next step, not eager to choose the path nor weighted down with the heavy responsibilities of the future, but quietly following the Shepherd, one step at a time.”
Our love to all,
Maddy
However, the wound site looks like Sam was hit with an arrow and it will take a little longer to close up. It almost looks like he has two belly buttons. I told him he would be able to tell his grandchildren tall tales one day. Of course, we would have to have grandchildren for that to happen. No pressure, of course, on our children.
On Tuesday, April 7 th, Sam was examined by his E/N/T, Dr. Celin, who again said he saw no evidence of disease. This is a phrase we love hearing. We asked if Sam would continue to improve and his answer was non-committal. He said that most improvements occur in the first six months following treatment, but smaller changes could continue to occur up to 18 months after the cancer treatments end. It’s been almost 7 months since Sam’s final radiation and chemo treatments and he has recently noticed some increased ability to swallow larger quantities of food in one bite.
We continue to pray that his saliva production would increase because his limited saliva production is still hampering his eating/swallowing, but he is trying to adapt and I’m always impressed that doesn’t complain. Also, he now weighs 148 pounds – a 19 pound gain from his lowest weight in September 2008.
The best part of Sam’s feeding tube removal for me is that I can hug my honey again without having to worry about his tube being in the way or hurting him. It’s the little things that become precious.
I’ll close with a quote from Streams in the Desert by L.B. Cowman: “This is the blessed life – not anxious to see far down the road nor overly concerned about the next step, not eager to choose the path nor weighted down with the heavy responsibilities of the future, but quietly following the Shepherd, one step at a time.”
Our love to all,
Maddy
Sunday, March 29, 2009
Turn a page
April 1, 2009 - Sam is scheduled to have his feeding tube removed after seven months. NO JOKE!
It's interesting how this event is almost more of a celabratory event for us than the news about the results of the PET/CT scan. You may wonder how that could be, but when we stopped to analyze our feelings about our joint reaction to the results - we had more of a "Whew!" reaction than "Woo-hoo!".
I tried to explain this to a friend this way... it's like we've been being chased by a monster and we are running for our lives and we manage to barely escape... but we suspect the monster could return and try to scare the crap out of us again. It's kind of like that.. Whew!
For the past week, Sam has been logging his calories trying to consume 2300 calories/day so that he can maintain his weight.... without using the feeding tube... and he has been able to do that. Honestly, it's not been as easy as you might think in that he has trouble swallowing most solid/dry foods. (All the women out there like me who can look at food and gain weight - don't feel his pain, I know - poor boy.) But, he is really hot to get this tube out... especially since the test shows Sam to be in remission.
For the first time in a long time, there is an opportunity to do "normal things" again. I'll tell you about that in another post.....
Wednesday will be a page turner day! We can hardly wait.
Thanks for being our prayer support.
It's interesting how this event is almost more of a celabratory event for us than the news about the results of the PET/CT scan. You may wonder how that could be, but when we stopped to analyze our feelings about our joint reaction to the results - we had more of a "Whew!" reaction than "Woo-hoo!".
I tried to explain this to a friend this way... it's like we've been being chased by a monster and we are running for our lives and we manage to barely escape... but we suspect the monster could return and try to scare the crap out of us again. It's kind of like that.. Whew!
For the past week, Sam has been logging his calories trying to consume 2300 calories/day so that he can maintain his weight.... without using the feeding tube... and he has been able to do that. Honestly, it's not been as easy as you might think in that he has trouble swallowing most solid/dry foods. (All the women out there like me who can look at food and gain weight - don't feel his pain, I know - poor boy.) But, he is really hot to get this tube out... especially since the test shows Sam to be in remission.
For the first time in a long time, there is an opportunity to do "normal things" again. I'll tell you about that in another post.....
Wednesday will be a page turner day! We can hardly wait.
Thanks for being our prayer support.
Tuesday, March 24, 2009
And the news is...
Great!
Sam's PET/CT scan is clean!!!!! No sign of any abnormalities.
We are relieved to get this news and we are hopeful that he will continue to remain cancer-free. Sam is looking forward to the next step which is getting the feeding tube removed and he plans to call the GI specialist to try to get that scheduled soon.
Thanks so much for for your prayers on our behalf - and we are grateful for you all.
Sam's PET/CT scan is clean!!!!! No sign of any abnormalities.
We are relieved to get this news and we are hopeful that he will continue to remain cancer-free. Sam is looking forward to the next step which is getting the feeding tube removed and he plans to call the GI specialist to try to get that scheduled soon.
Thanks so much for for your prayers on our behalf - and we are grateful for you all.
Monday, March 23, 2009
Nothing to Report - Monday 3/23/09
This morning Sam called the office where he sees the ENT, but he was not it that office today. They said they would forward the message, but as of this moment we have not received a call back. Sam plans to call tomorrow morning if he does not hear from the doctor first. I will post something as soon as the answer comes.
The waiting is always the hardest part. For myself, I would just like to know - good or bad. I would have called last Thursday, but it's not my place to call for Sam and I think he' s happier not knowing. Figures; we're opposites.
Yes, honestly I am going a little crazy. Not quite in the "Red Zone" as Cesar Milan would say, but almost. Don't know who Cesar Milan is? He's the Dog Whisperer on the National Geographic Channel and works with animals that are out of control:
Why the video... well, last Friday, when we didn't have an answer, I thought to myself, I need to be distracted so I don't focus on the test. I don't know why, but I thought about the Dog Whisperer and how when Cesar wants to redirect obsession or aggression he uses distraction. So, we went out for Sushi - it worked for a little while.
Praying works the best and we are doing a lot of that. If you are inclined, we would appreciate it if you would shoot up an arrow prayer for us. We are praying for good news.
Maddy
The waiting is always the hardest part. For myself, I would just like to know - good or bad. I would have called last Thursday, but it's not my place to call for Sam and I think he' s happier not knowing. Figures; we're opposites.
Yes, honestly I am going a little crazy. Not quite in the "Red Zone" as Cesar Milan would say, but almost. Don't know who Cesar Milan is? He's the Dog Whisperer on the National Geographic Channel and works with animals that are out of control:
Why the video... well, last Friday, when we didn't have an answer, I thought to myself, I need to be distracted so I don't focus on the test. I don't know why, but I thought about the Dog Whisperer and how when Cesar wants to redirect obsession or aggression he uses distraction. So, we went out for Sushi - it worked for a little while.
Praying works the best and we are doing a lot of that. If you are inclined, we would appreciate it if you would shoot up an arrow prayer for us. We are praying for good news.
Maddy
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