Wednesday, October 22, 2008

Patience and Peace

Wednesday I had to stop by the Cancer Center to pick up new prescriptions for Sam and I had an opportunity to talk with Lori, Dr. Chen's nurse. After we exchanged pleasantries we talked about Sam's progress. She shared with me that another patient that has recovered from his type of cancer reported that she finally felt better after seventeen (17) months! Lori said that they typically tell patients that it takes about a year to recover from this treatment. I don't remember hearing that timetable; I think that might have registered in my memory.

Because it took a month for Sam to begin treatment after his first PET/CT scan I have been wondering if the treatment they developed would account for the possibility that the cancer would have spread. So, I asked Lori about the chemo drug they used, Cisplatin, thinking that maybe the reason they gave him Cisplatin was to kill any cells that may have spread to other areas of his body. Unfortunately, Lori said that Cisplatin is given to enhance the effectiveness of the radiation treatments. I think my eyes got larger at that moment as I realized that they weren't focused on whether it might have spread. Lori looked at me with understanding eyes and she said, "I know people don't understand this, but we treat the main problems first." I pushed her further for clarification and asked, "Since this drug moves systemically, wouldn't it destroy cancer cells in other parts of the body?" Her answer, "No, I don't think so. It's used to enhance the radiation treatments."

That was kind of a big gulp moment for me. I remember Dr. Chen remarking at our last office visit that radiation sometimes doesn't get all the cancer in the lymph nodes and if that's the case they can surgically remove them. So, all this means is that we won't know anything for certain until November 11th. Waiting is hard. It requires patience. I have learned in the past that asking for patience is a serious thing to ask for as those lessons tend to be painful. You know what they say - Be careful what you wish for, you might just get it.


Like most people there have been plenty of times in my life that I have had to learn patience and to be honest that is one of the areas of my life where I still struggle. It probably has its roots in wanting to be in control. You know, one the the triplets of terror I mentioned in the past (expectation, perspective, control).


When you run into the grocery store for a few items and you are standing in the "express" checkout line waiting for the line that never seems to move, do you find you are impatient, or do you think of it as I do as an opportunity to do nothing and not feel guilty?


Truthfully, the grocery store example is one of the few times I exhibit patience when waiting. I can list about 15 other examples where patience is something I struggle with: calling a company and having to go through multiple layers of options before being able to talk with a human; commuter traffic; having a slow computer; giving computer tech support to a novice over the telephone; and chief among them for me has been waiting for test results on Sam's condition.

Gal 5:22 But the fruit of the Spirit is: love, joy, peace [or, freedom from anxiety], patience, kindness, goodness [or, generosity], faith,


So, now I think maybe it's better to ask for peace - aw heck, who am I kidding, I need the whole bowl of fruit.

So, if I were to list our prayer needs, the biggest need is for Sam's relief from pain. He would love to be able to swallow and not have pain. He is weary of being ill and would love to be able to see some measurable progress. Patience. Patience. Patience. Waiting is hard but we have HOPE; and knowing that others are praying for us and have shown us kindness - that makes it bearable.

2 comments:

Alison Weber said...

Hi Maddie and Sam, Have noticed that you've mentioned the word "perspective" several times in your posts. Now this word is standing out to me too, and it seems to pop from the pages of Oswald Chamber's Utmost for His Highest this week. Today's devotional, for example, said, to me, that we moved forward by looking back at the Cross and Who God Is and What He Asks of us not to gain anything but b/c all things are already ours in Him by faith. I believe this altho when in the throes of misery of many varieties it's mentally difficult to apply at the time when it seems most needed. And, so, I think this is just evidence of how much we need prayer from ourselves and others. You are both precious to God and to your brothers and sisters in Christ.

Anonymous said...

Hi Maddy:

As a fellow journeywoman through this cancer stuff, allow me just to share this with you. First, I know nothing. Sorry.

So, I have no idea if this helps or not. Jim's second round of the chemo was ESHAP, which included cisplatin, which was one of the main new drugs for him. It is a chemo drug that does trigger cell death. And Jim did not have radiation. So, they were not using it to help radiation. They were using it to trigger cell death. The one main difference was that Jim was infused with it for 5 straight days. I don't recall how long Sam's cisplatin use was for. So, that leads me back to point 1, that I know nothing. But I did want to mention they used it on Jim to kill cancer cells, and he had never received radiation.

You know, Maddy, I find that often I hear these professionals talk out of both sides of their mouths. I don't think it's because they don't know what they are talking about, but rather they don't know how the human body is going to respond to what they do. Once, again, I struggle with the term "practicing" medicine. But it is what it is, isn't it?

Sorry, I can't comment on the spiritual side of your comments. I prayed 2 major prayers in my life years ago that God definately took me up on. One was, I prayed for patience....dah... The other was that I prayed that God would never make my life be such that I didn't need him desperately. Dah again...that was really brave, noble or stupid, perhaps all 3 at once. What was I thinking????

Still praying for you and the best. November 11th will be here soon. I'm not sure what's harder, the waiting, or what's at the end of the waiting that makes patience in this circumstance for you an interesting point. The not knowing is so hard. It messes with hope and faith and trust, irregardless of how long and hard I have walked with the Lord.

I remember just wanting the 6 chemo CHOP sessions to be over, so we could "get on with life." Funny how circumstances change things. Now, I don't even want a day to end. All of a sudden there is no need for patience. I find myself praying for time to slow down. An opportunity to sit at the hospital with Jim for 15 hours has become "date night."

Weird huh?

40 or so years from now, I will be very excited by the fact that my joy will no longer be interrupted by this life.

Love to you
Gloria


Gloria